Where to turn
Canadian Association for Community Living
This association provides information, support and advocacy for people with an intellectual disability and their families.
Ontario Adult Autism Research and Support Network
This website includes worldwide research, events and innovative solutions. Follow the links to sign up for the electronic mailing list.
PLAN
This non-profit organization helps members with future planning and creating support networks.
Vela Microboard Assocation
This association provides information on creating a microboard — a non-profit organization including the person with a disability, family and community.
More Than a Mom — Living a Full and Balanced Life When Your Child Has Special Needs by Amy Baskin and Heather Fawcett (morethanamom.net)
Advice from parents who have been there
“With your child, dream big. And do the same dreaming for yourself. Don’t compromise.” – Martha Eleen
“Ensure that there is a circle of people around your child, who will spend time being with her. Involve your child in decision-making about her future. Keep probing to find out what she wants versus what you think she wants.” – Lyn Kyneston
“Apply for individualized funding well before you need it.” – Joanna Bullard
“Teach your child as many life skills as you can. Check out respite options [programs providing overnight, weekend or longer care], so he can get used to spending time away from you. Learn to let go.” – Deb Lajoie , 53, of Trenton, Ont., mom to a 30-year-old son with special needs who now lives in his own apartment
“If you have a teen, look into options now. Contact your local Community Living. Network with families and search for individuals who are compatible with your child.” – Linda McCullough
“Talk to other families who have children older than yours. Advocate as a collective group. Don’t take no for an answer — keep working at it and find other solutions. Be forward thinking but also appreciate the moment. Remember to take care of yourself.” –parents of teens and adults in the Dual Diagnosis Program at the Centre for Addiction and Mental Health, Toronto
This article originally appeared in the November 2008 issue of More
